Report Card Directory
To highlight the urgent need for change, the American Society of Hematology(ASH) published biennial report cards in 2016,2018, and 2020 entitled the “State of Sickle Cell Disease(SCD)”.
These reports cards offer stakeholder ratings from 1 to 10 on the current state of access to care in the U.S., global issues, research and clinical trials, and health professional education and training related to sickle cell. ASH developed each State of SCD Report Card in partnership with the SCD Coalition through several surveys and meetings. Though advances have been made, the scores in these report cards demonstrate that there is still much to do to improve the state of care and outcomes for those living with SCD.