Sickle Cell Disease Coalition
We're committed to conquering SCD.
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access to care in the U.S.
In the United States, access to appropriate care is limited by a number of critical factors.
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Training and professional education
There are not enough health care providers with comprehensive knowledge and expertise to care for people with sickle cell disease.
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Research and clinical trials
The majority of available treatments manage symptoms of the disease, rather than treating the underlying cause of sickling.
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global issues
Sickle cell disease is a major killer of infants and children in the developing world, especially in Africa and India where the disease is more common.
When a doctor does understand sickle cell disease, . . . the care is superb.
What is Sickle Cell Disease?
Sickle Cell Disease is an inherited blood disorder that causes red blood cells to form into a crescent shape, like a sickle. These cells break apart easily, clump together, and stick to the walls of blood vessels, blocking the flow of blood, which can lead to a range of serious health issues.
Find Resources
Explore our resource library for helpful tools on sickle cell disease.
Our Members
The Sickle Cell Disease Coalition is composed of public health, research, and provider organizations, patient groups, faith-based organizations, federal agencies, industry representatives, and foundations with an interest in Sickle Cell Disease.
- AABB
- ADDMEDICA
- ASH Research Collaborative
- America's Blood Centers
- American Academy of Emergency Medicine
- American Academy of Pediatrics*
- American Psychiatric Association
- American Public Health Association*
- American Red Cross
- American Society for Apheresis
- American Society for Blood and Marrow Transplantation
- American Society for Clinical Pathology
- American Society of Gene & Cell Therapy
- American Society of Hematology*
- American Society of Nephrology
- American Society of Pediatric Hematology/Oncology (ASPHO)
- American Thoracic Society
- ApoPharma
- Association of Pediatric Hematology/Oncology Nurses
- Association of Public Health Laboratories*
- Axis Advocacy
- Bluebird Bio
- Centers for Disease Control and Prevention (CDC)
- Cerus Corporation
- College of American Pathologists
- Crispr Therapeutics
- Doris Duke Charitable Foundation
- Emergency Department Sickle Cell Care Collaborative*
- Emmaus Life Sciences, inc.
- EpiDestiny
- FMDT SOS GLOBI
- Food and Drug Administration (FDA)
- Foundation for Sickle Cell Disease Research
- Functional Fluidics
- Global Blood Therapeutics
- GlycoMimetics
- Hematology and Oncology Society of Africa*
- International Association of Sickle Cell Disease Nurses and Physician Assistants
- Ironwood Pharmaceticals
- Mast Therapeutics, Inc.
- Medunik USA
- Muhimbilii University of Health and Allied Sciences (MUHAS) Sickle Cell Programme
- NICHQ
- National Heart, Lung, and Blood Institute (NHLBI)
- National Marrow Donor Program
- National Medical Association (NMA)
- National Minority Quality Forum
- Novartis
- Pediatric Hospital Sickle Cell Collaborative
- Pfizer
- Prolong Pharmaceuticals
- Raremark
- Sanofi Genzyme
- Sickle Cell 101
- Sickle Cell Adult Provider Network
- Sickle Cell Aid Foundation
- Sickle Cell Community Consortium
- Sickle Cell Disease Association of America*
- Sickle Cell Foundation of Ghana
- Sickle Cell Outcome REsearch Program
- Sickle Cell Society UK
- Sickle Cell Warriors
- Sickle Transplant Alliance for Research (STAR)
- Terumo BCT
- Thalassaemia International Federation
- The Emmes Corporation
- The Shikuri Project Charitable Trust
- The Sickle Cell Disease Association of Canada/L’Association D’Anémie Falciforme Du Canada (SCDAC/AAFC)
- Vanguard Therapeutics, Inc
- Vertex Pharmaceuticals
*Member belongs to the Steering Committee.
sickle cell disease. Learn About Membership
Spread the Word
The status quo is unacceptable & we are setting out to change it. Join us to #ConquerSCD! www.scdcoalition.org