The Sickle Cell Disease (SCD) Strategic Dissemination Model is a comprehensive framework developed by the Access to Care subcommittee to standardize and optimize how information about sickle cell disease is shared across diverse stakeholder groups.
This model provides a structured approach through five interconnected phases that guide users in analyzing their audience, selecting appropriate channels, implementing dissemination strategies, and evaluating effectiveness. By offering guiding questions and practical considerations at each phase, the model empowers organizations to create more effective communication plans that reach intended audiences with clarity and purpose. For the SCD community and stakeholders—including healthcare providers, researchers, advocacy groups, patients, and caregivers—this resource is particularly valuable as it addresses the unique challenges of communicating complex medical information across varied literacy levels, cultural contexts, and geographic regions. The model helps bridge communication gaps that have historically hindered equitable access to SCD information, ultimately supporting better health outcomes through improved knowledge sharing and coordinated messaging across the SCD ecosystem and the world at large. Download here.