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The SCD Coalition consists of many different organizations that lead local, national, and international efforts to conquer sickle cell disease (SCD).
While membership to join the SCD Coalition is limited to organizations, individuals seeking opportunities to get involved in sickle cell efforts are encouraged to join and support one of the coalition’s member organizations. Check out the organizations below to discover opportunities to get involved.
Smile Sickle Cell Foundation (SSCF) is a community-based organization serving people living with SCD in rural parts of Nigeria. The organization periodically runs mass outreach programs to spread sickle cell awareness, fight stigma, test for trait, improve access to care, and support warriors in managing their disease. SSCF is seeking health care workers to support outreach events and offer community-based tele-health for warriors in need.
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The Sickle Cell Transplant Advocacy and Research Alliance (STAR) is an organization focused on increasing awareness, accessibility, and success of cures for SCD, such as bone marrow transplant and gene therapy. STAR welcomes involvement from pediatric hematology and stem cell providers, community-based organizations, and warriors and families.
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The Sickle Cell Community Consortium (SCCC) is a network of sickle cell community-based organizations and warrior and caregiver advocates, united to provide a platform that centers sickle cell education, awareness, policy, legislation, research, and advocacy around the needs, expertise, and values of warriors and caregivers. SCCC welcomes all active educators, advocates, researchers, and providers to connect and partner.
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The Sickle Cell Adult Provider Network (SCAPN) is an interactive network of healthcare providers and investigators from multiple disciplines who serve adults living with SCD. This network focuses on adult-oriented research, clinical care, provider education and training, mentorship, and advocacy.
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Sick Cells is a national advocacy organization for sickle cell disease whose mission is to elevate the voices of the sickle cell disease (SCD) community and our stories of resilience. The Sick Cells Ambassador Program is a volunteer network of advocates dedicated to changing the landscape of sickle cell disease with a focus of policy. This diverse network of sickle cell ambassadors meets regularly to discuss the community’s needs, how to best educate our peers, and how to engage in policy at all levels.
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