Join today and make a difference

The SCD Coalition is composed of over 100 member organizations around the world working to address sickle cell disease (SCD). A directory of all SCDC member organizations is listed below with their websites linked.

If you are interested in becoming a member of the SCD Coalition, apply to join or contact us at coordinator@scdcoalition.org for more information.

ONLINE APPLICATION

MEMBER DIRECTORY

*Member belongs to the Steering Committee. Total Number 83
  • Access To Care
  • Blood Donor Diversity
  • Global Perspectives
  • Research & Clinical Trials
  • Sickle Cell Trait
  • Alphabetically (A to Z)
  • Alphabetically (Z to A)

Agios Pharmaceuticals

America’s Blood Centers (ABC)*

American Academy of Emergency Medicine (AAEM)

American Academy of Pediatrics (AAP)

American Psychological Association (APA)

American Red Cross

American Society for Apheresis (ASFA)

American Society for Clinical Pathology

American Society for Transplantation and Cellular Therapy

American Society of Gene & Cell Therapy (ASGCT)

American Society of Hematology (ASH)*

American Society of Nephrology

American Society of Pediatric Hematology/Oncology (ASPHO)

ASH Research Collaborative

Association for the Advancement of Blood & Biotherapies (AABB)

Association of Maternal & Child Health Programs (AMCHP)

Association of Pediatric Hematology/Oncology Nurses (APHON)

Association of Public Health Laboratories

Axis Advocacy

Beam Therapeutics

Bluebird bio

Breaking the Ssickle Cell Cycle Foundation

Caribbean Institute for Health Research *

CAribbean network of REsearch on Sickle cell disease and Thalassemia (CAREST) *

Caring Cross

Cayenne Wellness Center

Centers for Disease Control and Prevention (CDC)

Clinton Health Access Initiative (CHAI) *

College of American Pathologists

Editas Medicine

Emergency Department Sickle Cell Care Coalition

Emmaus Life Sciences

Expecting Health

Food and Drug Administration (FDA)

Foundation for Sickle Cell Disease Research (FSCDR)

Foundation for Women & Girls With Blood Disorders

Global Alliance for SCD Organizations (GASCDO)*

Global Sickle Cell Alliance (GLOSCA)

International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA)

Mellamia Global Foundation

MTS Sickle Cell Foundation*

Muhimbili University of Health and Allied sciences (MUHAS)

National Alliance of Sickle Cell Centers (NASCC)

National Black Nurses Association (NBNA)*

National Heart, Lung, Blood Institute (NHLBI)

National Human Genome Research Institute (NHGRI)

National Institute for Children’s Health Quality (NICHQ)

Novo Nordisk

Options for Children in Zambia

Our Sickle Cell Educate Warriors Initiative (OSCEWI)

Pan African Sickle Cell Federation International (PASCFI)

Pathways to Trust

Pediatric Hospital Sickle Cell Collaborative

Raremark Foundation

Reach a Child Initiative Zambia (RACIZ)

Sarafinah Sickle Cell Society (SASCELLS)

Sick Cells

Sickle Cell 101*

Sickle Cell Adult Provider Network (SCAPN)

Sickle Cell Advocacy and Management Initiative (SAMI)

Sickle Cell Aid Foundation *

Sickle Cell Association of Texas Marc Thomas Foundation

Sickle Cell Awareness Group of Ontario (SCAGO)

Sickle Cell Community Consortium (SC3)

Sickle Cell Disease Association of America (SCDAA)*

Sickle Cell Disease Association of America, Michigan

Sickle Cell Disease Foundation of California

Sickle Cell Foundation of Georgia

Sickle Cell Research Center*

Sickle Cell Society UK

Sickle Cell Transplant Advocacy and Research Alliance (STAR)

Sickle Cell Uhuru Trust (SCUT)

Sickle Cell Warriors

Smile Sickle Cell Foundation

Terumo BCT

The Shikuri Project Charitable Trust

The Sickle Cell Disease Association of Canada/L’Association D’Anemie Falciforme Du Canada (SCDAC/AAFC)

Tumaini Sickle Cell Organization

Vertex Pharmaceuticals

Your Nonprofit Guru Foundation

  • Sub-Committee Key:
  • Access to Care
  • Blood Donor Diversity
  • Global Issues
  • Research & Clinical Trials
  • Sickle Cell Trait