Access To Care

Our short-term goals:

• Enhance knowledge of SCD among hematologists, primary care providers, ED physicians, mid-level providers, and palliative care specialists.
• Use hub and spoke model or other approaches to improve geographic access to care.
•  Implement coordinated care models that incorporate community health workers, ensuring more equal quality of care regardless of where an individual with SCD receives care.
• Fund more implementation research.
• Identify essential health benefits for people with SCD enrolled in Medicaid.

Our long-term goals:

• Stabilize funding streams and sustainability of programs domestically.
• Seek payment reform to support comprehensive management of pain and other long-term complications.
• Support development and expansion of effective state strategies ("carve-outs") to enhance public insurance coverage and reimbursement.