Language: English
The Sickle Cell Disease Coalition (SCDC) is composed of national or international organizations committed to conquering sickle cell by advancing community-based advocacy, public health, research, clinical care, philanthropy, policy, regulation, and/or available treatments.
The Sickle Cell Disease Coalition (SCDC) offers a platform to create countless connections and partnerships on important projects related to sickle cell. By ensuring that our directory includes a wide range of voices and perspectives, we can better understand the needs and interests of the SCD community and support improving the quality of care of individuals living with SCD. This inclusivity helps us to build stronger relationships, promote diversity and health equity, and foster a sense of belonging amongst our SCDC members.
VIEW DIRECTORYAll SCDC members must apply to join the SCD Coalition and be reviewed by the SCDC Steering Committee. Upon joining the SCD Coalition, each member organization identifies at least one representative who will serve on the SCDC by regularly participating in meetings, communications, and activities. Nevertheless, each SCDC member has the independence and discretion to opt out of any SCD Coalition discussion and/or activity which presents a conflict of interest (COI).
The SCD Coalition does not offer membership to individuals; however, many of our member organizations do. If you are an individual interested in joining an organization affiliated with the SCD Coalition, check out a list of SCDC member organizations that are accepting individuals as members.
Additionally, stay abreast with the SCD Coalition by following our communication channels, including the monthly SCDC Update e-newsletter, SCDC YouTube channel, and SCDC Twitter (@ConquerSCD).
Patricia Kavanagh, MD, co-chair of the EDSC3, Boston University School of Medicine and Boston Medical Center, discusses her experience working with hematologists to improve care for patients with sickle cell disease. She shares that collaboration is key to the success of this effort.
