ABOUT THE SCDC
The Sickle Cell Disease Coalition (SCDC) is an alliance of diverse stakeholder organizations from around the world uniting to conquer sickle cell disease (SCD). The SCD Coalition was established by the American Society of Hematology (ASH) in 2016 to amplify the voice of the sickle cell stakeholder community, foster collaboration, and improve outcomes for individuals with SCD. Its membership includes an array of organizations and stakeholders interested in sickle cell, such as those involved in public health, research, clinical care, community advocacy, philanthropy, policy, industry, and beyond.
OUR BACKGROUND
New approaches in managing this disease have improved diagnosis and supportive care over the last few decades, but many individuals living with SCD still have severe clinical complications to overcome, as well as high barriers to access comprehensive care. The future of care for individuals living with SCD will depend on advancing highly targeted approaches to research, discover, and implement new evidence-based and community-centered treatments and programs. To ensure that individuals living with SCD receive high-quality care, the sickle cell stakeholder community must gather to use multi-disciplinary and coordinated efforts that produce the greatest impact. A multi-stakeholder approach would deliver advances faster, more economically, and more efficiently to individuals suffering from this debilitating disease domestically and internationally.
