Plain-Language Summary (PLS) Guide for SCD Research

Welcome to the Plain Language Summary (PLS) Guide for Sickle Cell Disease Research

This guide is designed to help researchers, advocates, and community members create clear, accessible summaries of sickle cell disease (SCD) research that people can easily understand without a scientific background. Whether you’re announcing a new study, sharing results, or engaging the community, this resource offers step-by-step instructions, templates, and tools to support your efforts. By using plain language, you can make research more inclusive, build trust, and empower individuals affected by SCD to understand better and engage with the science that impacts their lives.

The guide provides answers and guidance to key questions such as:

• What is a plain-language summary and why is it important?
• When and how can PLS be used throughout the research process?
• What steps should I follow to write a clear and effective PLS?
• How do I identify and tailor content for my target audience?
• What are the best strategies for sharing PLS with the SCD community?
• How can I evaluate the impact of my PLS and improve future efforts?

Explore the guide to learn how to write and share PLS effectively—and help bridge the gap between research and the SCD community.