Over the past century, great advances have been made in the understanding and treatment of sickle cell disease (SCD). However, many basic scientific processes are still not fully understood, too few treatments have been developed, and most of the people who have SCD do not have access to the treatments that could improve the duration and quality of their lives.

The State of Sickle Cell Disease: 2016 Report has been created by the American Society of Hematology (ASH) based on the feedback of more than 100 thought leaders and representatives from other organizations to look at the state of SCD and identify the greatest opportunities for improvement. This report is a summary of the current state of research, access to care, and global issues, and it provides an outline of opportunities to change the status quo for people with this disease. ASH is inviting partner organizations to endorse the report and take on projects that will advance the outlined goals.

The following organizations have endorsed the report:

• American Academy of Emergency Medicine
• American Academy of Pediatrics
• American College of Emergency Physicians
• American Public Health Association
• ApoPharma
• American Society for Clinical Pathology
• American Society of Pediatric Hematology/Oncology
• Association of Public Health Laboratories
• Emergency Department Sickle Cell Care Collaborative*
• Emergency Nurses Association
• Emmaus Life Sciences
• Foundation for Sickle Cell Disease Research
• Global Blood Therapeutics
• Global Sickle Cell Disease Network
• GlycoMimetics, Inc
• International Association of Sickle Cell Disease Nurses and Physician Assistants
• Mast Therapeutics, Inc.
• National Marrow Donor Program
• National Medical Association
• Pfizer Inc.
• Prolong Pharmaceuticals
• Sickle Cell Adult Provider Network
• Sickle Cell Disease Association of America
• Sickle Cell Warriors

*The Emergency Department Sickle Cell Care Collaborative (EDSC3) endorses the State of Sickle Cell Disease: 2016 Report. The endorsement by EDSC3 does not represent or obligate in any way any of the other organizations that are represented by EDSC3 members.