October 5, 202410:30 AMVirtualJoin Carla Lewis, CEO of Kids Conquering Sickle Cell Disease Foundation and Rae Blaylark, CEO of Sickle Cell Foundation of Minnesota for the Empowered Caregivers Forum.
Host Carla Lewis and Rae Blaylark are mother's of children born with sickle cell disease. We welcome you to join a forum created to support, educate and share resources with parents/caregivers of a child/children or young adult with sickle cell disease/ trait or thalassemia. The forum will provide a safe place for parents to share & ask questions bridging the gap to important conversations.
Sessions are scheduled 7:30am PT/ 9:30 am CT/ 10:30 am ET - There are three scheduled dates:
Session I April 20: Exploring Curative Therapy to Treat Sickle Cell Disease
Session II July 20: Sickle Cell:The Focal Segmental Glomerularscelerosis (FSGS)-Kidney Disease. This session is a benefit to those living with sickle cell disease and sickle cell trait. Let's work together to increase awareness.
Session III Oct 5: Let Us Talk About It: Strokes &
Characteristics of Moyamoya Syndrome in Sickle Cell Disease- Symptoms, Causes, & Treatment
Each session will offer guest speakers and a Q& A discussion session.
Guest speakers for Oct 5 th session includes: Ramamoorthy Nagasubramanian, MD (DR. NAGA); Our discussion circle session will include an inspirational journey of a warrior Kayla Selmer sharing his experience managing sickle cell disease & moyamoya syndrome. She will share tips that help her throughtout his journey.
Carla Lewis & Rae Blaylark are parent & patient advocates dedicated to educating the community and support parents /caregivers. As parents they understand that it takes a village of support and resources to provide the best care for children/ young adults living with sickle cell.
We welcome YOU to join us for our interactive sessions! Register Today!
Participant Prizes & Resources ..
*All registered participants living within the US with verified attendance will receive a mailed resource packet with information.
* Each session will include a chance to win prizes!
* Attend all three sessions & you will be entered in a chance to win a $50 dollar Amazon Gift Card
Register Today! We look forward to meeting you! (You must register separately for all sessions due to separate session dates)
We welcome sponsors & supporters. If you are interested in being a sponsor/ supporter of this program or other educational programs, please contact admin@kidsconqueringscd.org
Language: English
