Nothing About Us Without Us: Challenges and Opportunities for Engaging Communities in the Development of Gene Therapies in Resource-Limited Settings

UPCOMING EVENTS

September 4, 2024

CMS & ASH Town Hall Meeting

The Centers for Medicare & Medicaid Services (CMS), in partnership with the support of the...

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September 4, 2024 Washington DC

Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence

The Reagan-Udall Foundation for the FDA, in collaboration with the Bill & Melinda Gates Foundation,...

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September 6, 2024

Commercial Challenges for Gene Editing (including manufacturing and patient access)

Join Caring Cross for their Technology Education webinar. This course will explore the commercial landscape...

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September 6, 2024 Washington DC

Critical Conversations: Access to Fertility Services

Sickle Cell Reproductive Health Education Directive's (SCRED) Critical Conversations Panel And Dinner Aims To Address...

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September 7, 2024

10th Anniversary Decade of Hope Gala

Join Sickle Cell Uhuru Trust Kenya and the Global Action Network for Sickle Cell and...

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September 7, 2024

Sickle Cell Warrior Walk & Run 5k

Breaking The Sickle Cell Cycle Foundation, Inc. cordially invites you to the 4th Annual Sickle...

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September 7, 2024

Sickle Cell-ebration of Hope Champions Dinner & Gala

Join the Sickle Cell Foundation of Minnesota for a fun-filled evening of inspiration, aspiration, and...

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September 7, 2024

Transformative Curative Gene therapy transplant for Sickle Cell Anemia Educational Symposium

Save the date for this educational symposium! Join TOVA Community Health and hear from guest...

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September 12, 2024

More Than Our Sickle Cell: A Global Community Conversation (SEPT)

Join us for LIVE conversations with Biba Tinga, Warrior Mom & President of Sickle Cell Disease...

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September 14, 2024

13th Annual Stroll Sickle Cell-ebration

Join the Sickle Cell Association- St. Louis for their Annual Sickle Cell Stroll! The Sickle...

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September 14, 2024 Washington DC

2024 Cure Sickle Cell Now 5K Walk/Run

Join Howard University Center for Sickle Cell Disease in front of Howard University Hospital at...

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September 14, 2024 Atlanta, GA

Sickle Cell 5k Road Race/Walk | Concert| Candlelight Vigil

Registration is now open for the 44th Annual Sickle Cell Foundation of Georgia, Inc. 5K...

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September 14, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Save the Date! Come and join Sickle Cell Anemia Awareness of San Francisco for their...

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September 16, 2024

3rd Annual Sickle on the Green Golf Tournament

Join Sickle Cell Partners of the Carolinas for the 3rd Annual Sickle on the Green...

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September 17, 2024

Terumo Blood and Cell Technologies: Patient Listening Virtual Roundtable

Join Terumo Blood and Cell Technologies for a patient-focused, virtual roundtable where we will learn...

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September 18, 2024

16th Annual SCD Educational Summit

The Cayenne Wellness Center’s Annual Sickle Cell Disease Educational Summit spans four days and aims...

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September 18, 2024

SCDAA Nod to “Naz” Traveling Exhibit

Sickle Cell Disease Association of America, Inc. invites all to attend the Nod to "Naz"...

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September 19, 2024

17th Annual Sickle Cell in Focus Conference

A world-class educational update on sickle cell disease, the Sickle Cell in Focus (SCiF) conference...

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September 19, 2024

UAMS 2024 Annual Sickle Cell Symposium

Join the University of Arkansas for Medical Sciences for their 2024 Annual Sickle Cell Symposium- Living...

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September 20, 2024

Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases

The FDA Center for Biologics Evaluation and Research (CBER) is hosting a public patient listening...

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September 21, 2024 Washington DC

Sickle Cell Awareness Community Day Program

Join us this September for a special Community Day program in honor of National Sickle...

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September 21, 2024

Sickle Cell Disease Dinner and Musical Extravaganza

Join the Sickle Cell Disease Association of America- St. Ptersburg Chapter for their Sickle Cell...

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September 21, 2024

Walk/5K Run for Sickle Cell

Join the Massachusetts Sickle Cell Association for their walk/run event! The in-person walk/run will take place in...

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September 24, 2024 Washington DC

HHS Inaugural Sickle Cell Disease Summit

On behalf of HHS Secretary Xavier Becerra and Assistant Secretary for Health Admiral Rachel Levine,...

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September 30, 2024

US News live- A Call to Action to Reverse Racial Stigmas in Sickle Cell Disease Care

This webinar is part of Healthcare of Tomorrow, a virtual event series from U.S. News...

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October 16, 2024

Advancing Rare Disease Therapies Through an FDA Rare Disease Innovation Hub

The Reagan-Udall Foundation for the FDA, in collaboration with FDA’s Rare Disease Innovation Hub, will...

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October 18, 2024

Nothing About Us Without Us: Challenges and Opportunities for Engaging Communities in the Development of Gene Therapies in Resource-Limited Settings

Join Caring Cross in their Scientific Seminar. Michael W. Louella talks with two community advocates...

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October 23, 2024

SCDAA 52nd Annual National Convention

Save the Date: The 52nd Annual National Convention will be held from October 23-26 in...

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October 23, 2024

SCDAA 52nd Annual National Convention

Save the Date: The 52nd Annual National Convention will be held from October 23-26 in...

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October 28, 2024

Sickle Cell Data Collection Program Summit

The 2024 Sickle Cell Data Collection Summit will be held online October 28. The Summit...

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November 1, 2024

Sickle Cell & Chronic Pain Management Symposium 2024

Join Kids Conquering Sickle Cell Foundation for their symposium event. This event is designed for...

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November 2, 2024

Sickle Cell & Chronic Pain Management Symposium 2024

Join Kids Conquering Sickle Cell Foundation for their symposium event. This event is designed for...

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November 23, 2024 Atlanta, GA

SCFG Black Tie Gala 2024

Please join us for a Black-Tie Charity Gala Affair benefiting Georgia's sickle cell community! This...

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December 7, 2024 San Diego Convention Center

66TH ASH ANNUAL MEETING AND EXPOSITION

Mark Your Calendars! The American Society of Hematology is returning to San Diego for the...

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PAST EVENTS

August 29, 2024

P.O.W.E.R ECHO CHW Training

Join Sickle Cell Disease Association of America (SCDAA) for their next free P.O.W.E.R ECHO CHW...

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August 28, 2024

Sickle Cell Empowerment Circle

Join the monthly empowerment circle for community members impacted by sickle cell disease Support &...

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August 24, 2024

HHS Sickle Cell Disease Summit

Summit Theme: Empowered and Thriving SCD Warriors and Communities When: Tuesday, September 24, 2024 Time: 9:00 AM –...

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August 24, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...

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August 23, 2024

SCAGO Sickle Cell Disease Summit

The 4th Annual Sickle Cell Awareness Group of Ontario (SCAGO) Sickle Cell Summit themed "Innovative...

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August 19, 2024

SCD SOAR: Mental Health

Sickle Cell Disease SOAR is a new virtual series designed to enhance quality of life...

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August 17, 2024

2024 Sickle Cell Patient Education: Transition Care Management

Fred Hutch Cancer Center, Seattle Children’s, and Metropolitan Seattle Sickle Cell Taskforce invite you to...

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August 17, 2024

Is the Cure Right for Me? Webinar

This event aims to educate our community on the accessibility of a cure for sickle...

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August 13, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates, Health Workers, and Organizations in Driving Change and Support

Join the Global Sickle Cell Alliance for an empowering webinar on "Sickle Cell and Thalassemia:...

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August 12, 2024

NHBLI’s Annual SCD Research Meeting

The National Heart, Lung, and Blood Institute (NHLBI), a part of the National Institutes of...

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August 10, 2024

SCAASF Advocacy & Empowerment Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session!

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August 7, 2024 Virtual

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....

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August 7, 2024 Virtual

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....

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July 31, 2024 Virtual

SCAF Book Launch

The Sickle Cell Aid Foundation (SCAF) is delighted to extend a special invitation for the...

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July 30, 2024

Sleep Disturbances in Sickle Cell Disease Webinar

Join the Sickle Cell Data Collection project for one of their quarterly webinars featuring experts...

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July 28, 2024

NASCC Annual Meeting and Consensus

The National Alliance of Sickle Cell Centers is hosting it's annual consensus conference in Minneapolis,...

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July 27, 2024

Diversity & Inclusion & SCD

Join Cayenne Wellness Center for their miniSeminar: Diversity and Inclusion & SCD - Care for...

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July 27, 2024

SCAGO Transition from Paediatric to Adult Life (School and Healthcare)

Join the Sickle Cell Awareness Group of Ontario (SCAGO) for their Learning for Life Series:...

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July 27, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates and Organizations in Driving and Support.

Join the Global Sickle Cell Alliance as they culminate their social media campaign to raise...

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July 26, 2024 Atlanta, GA

Back to School Block Party

Join the Sickle Cell Foundation of Georgia, My Three Sicklers & the Sickle Cell Consortium...

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July 22, 2024

The Thriving Warrior: Supporting the Mental Health Needs of Individuals Living with Sickle Cell Disease

In observance of National Minority Mental Health Awareness Month, the HHS Office of the Assistant...

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July 20, 2024

SCDAA Warrior Walkathon

Walk with the Stars is now the SCDAA Warrior Walkathon! Rally your friends, family and...

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July 17, 2024

11th Annual Sickle Cell Warriors & Caregivers Convention

Join the 11th Annual Sickle Cell Warriors & Caregivers Convention, July 17-21, at the Westin...

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July 13, 2024

SCAASF Advocacy & Empowerment Program Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session on...

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July 13, 2024

SCDAA Masterclass En Español

Únase a la Asociación de Enfermedades de Células Falciformes de América (Sickle Cell Disease Association...

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July 13, 2024 Atlanta, GA

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...

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June 29, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Thank you for taking part in this remarkable opportunity to raise awareness for the sickle...

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June 29, 2024

Sickle Cell Disease Association of Illinois (SCDAI) Bowling Fundraiser

In honor of World Sickle Cell Day, please join SCDAI for a FUN-filled evening of...

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June 27, 2024

European Sickle Cell Federation 2024 Summit

Join the European Sickle Cell Federation (ESCF) at the Crowne Plaza Hotel, Blanchardstown, Dublin for...

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June 27, 2024

White House Black Initiative Lunch & Learn: Supporting the Civil Rights of Students with Disabilities

The White House Initiative on Educational Equity, Excellence, and Economic Opportunity for Black Americans cordially...

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June 24, 2024

National Health Authority of India Workshop on Sickle Cell

Join the National Health Authority of India as it holds this virtual capacity building workshop...

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June 24, 2024

Rising Above my “Red Curve” Challenges

Join the Ikorodu Public Schools Sickle Cell Club as they present this in-person event! LOCATION:...

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June 22, 2024

Martin Center Sickle Cell Initiative 28th Annual Sickle Cell 5K Walk/Run

There are hundreds of families in Central Indiana living with the burden of Sickle Cell...

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June 22, 2024

Projecto Luaforme evento do dia mundial da anemia falciforme

A ONG EFATHA (Associação de Ajuda as Crianças com Hemoglobinopatia) e o Projecto Luaforme convidam...

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June 22, 2024

Sickle Cell Association of Houston Party with a Purpose

Come rain or shine, join the Sickle Cell Association of Houston celebrating World Sickle Cell...

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June 21, 2024

Project SPIRIT Sickle Cell, Inc., Blood Drive

Marylanders who identify as Black or African American are welcome to participate in this livesaving...

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June 20, 2024

Sickle Cell Foundation Nigeria Virtual Townhall Meeting

Join the Sickle Cell Foundation of Nigeria as part of global World Sickle Cell Day...

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June 19, 2024

5th Annual World Sickle Cell Day 24 Hour Celebration

Spanning midnight to midnight on Saturday, June 19th, the Sickle Cell Community Consortium is proud...

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June 19, 2024

SCAGO World Sickle Cell Awareness Day Celebration

Join on June 19, 2024, for a World Sickle Cell Awareness Day Celebration from 11:00...

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June 19, 2024

SCANJ Juneteenth Block Party with A Sickle Cellabration

The Sickle Cell Association of New Jersey invites you to join their Sickle CELLabration for...

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June 19, 2024

SCD Awareness Illumination- Niagra Falls

Landmarks and buildings all across the globe will be illuminated red and while to symbolize...

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June 19, 2024

SCD Meet & Greet- McMaster Children’s Hospital

Join the Sickle Cell Awareness Group of Ontario on June 19, 2024, for a Meet...

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June 19, 2024

SCDAA SickleTini Summer Soiree

SickleTini is back! Join Sickle Cell Disease Association of America, Inc to recognize World Sickle...

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June 19, 2024

SICKLE CELL WARRIORS OF WISCONSIN BLOOD DRIVE

Join Sickle Cell Warriors of Wisconsin as they host a mobile blood drive in Milwaukee,...

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June 19, 2024

World Health Organization’s World Sickle Cell Awareness Day webinar

This webinar will provide background, raise awareness, and discuss best practices in treating and managing...

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June 19, 2024

World Sickle Cell Day

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June 18, 2024

Howard University- 11th Annual World Sickle Cell Day Webinar

Join this free webinar is presented by the Howard University Center for Sickle Cell Disease....

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June 18, 2024

Sickle Cell Education & Awareness Symposium

Please join the Sickle cell Foundation at the Palm Beach Post on Tuesday, June 18th...

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June 18, 2024

Sickle Cell Sanctuary Grand Opening

The Grand Opening Ceremony for the Sickle Cell Sanctuary will be held at the Sickle...

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June 18, 2024

Strike Out Sickle Cell

It’s A Sickle Cell-ebration! Come out and celebrate with the Sickle Cell Anemia Resource Foundation-...

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June 18, 2024

World Sickle Cell Day Data Panel

In observance of World Sickle Cell Day, the HHS Office of the Assistant Secretary for...

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June 18, 2024

“Stigma” and “Uncertainty in Illness”- Webinar

Global Sickle Cell Alliance, Inc (GLOSCA) is offering a webinar on “STIGMA” AND “UNCERTAINTY IN...

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June 15, 2024

2024 World Sickle Cell Day Event

Join the Sickle Cell Foundation of Florida for their 2024 World Sickle Cell Day Event....

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June 15, 2024

26th Annual Sickle Cell Walk

The 26th Annual Sickle Cell Walk will be held Saturday, June 15, 2023 in Birmingham,...

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June 15, 2024

Houston Sickle Cell Curative & Modifying Therapies Summit & Health Fair

Houston is home to the largest medical center in the nation. Despite this, individuals living...

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June 15, 2024

Redteenth Cultural Festival

Join the Sickle Cell Foundation of Palm Beach County & Treasure Coast and the Village...

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June 14, 2024

World Blood Donor Day

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June 11, 2024

Terumo Blood and Cell Technologies Clinical Expert Meeting

Join Terumo for this Clinical Expert Meeting to hear discussion about providing quality patient care...

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June 10, 2024

Blood Advocacy Week

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June 8, 2024

Advocacy and Empowerment Program Session 6

Join SCAASF in a session receiving social and medical advice.

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June 7, 2024 Broward County Convention Center

Foundation for Sickle Cell Disease Research (FSCDR) 18th Annual Sickle Cell Disease Research and Educational Symposium

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June 1, 2024

LGBTQ+ Pride Month Starts!

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June 1, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...

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SCDC CALENDAR