Peer Learning Exchange Session- Leveraging Sickle Cell Patient Communities for Improved Research & Healthcare Delivery

SCDC Peer Learning Exchange

September 11, 2025 10:00 AM ( America/New_York (UTC -04:00) ) Virtual

Introducing the first-ever SCD Coalition Peer Learning Exchange

Join us on September 11 at 10:00 a.m. EST / 3:00 p.m. GMT for a dynamic webinar exploring how sickle cell patient communities are shaping smarter research and more responsive healthcare systems.

Featuring:
• Bukola Bolarinwa, Haima Health Initiative
• Jenica Leah, My Friend Jen

💡 Hear how centering patient voices leads to better studies, stronger care delivery, and deeper connection across the health system.

📲 Register now by scanning the QR code in the image or visiting: https://ow.ly/zhuQ50WOqXe

From real-world experience to real-world change — join the exchange.

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FSCDR Virtual Symposium on Nursing in Sickle Cell Disease

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October 1, 2025

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September 29, 2025

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June 28, 2025 Orlando, FL

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December 17, 2024

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SCUT Hope for the Holidays – A Sickle Cell Christmas

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SCD S.O.A.R.: Affordable Housing

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Join Carla Lewis, CEO of Kids Conquering Sickle Cell Disease Foundation and Rae Blaylark, CEO...
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October 5, 2024 Boston, MA

State of Sickle Cell Care in MA

State of Sickle Cell Care in MA - Challenges and the Way Forward Hosted by...
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October 2, 2024

Community Town Hall & Education: Oxybryta

Join the Sickle Cell Consortium & SCDAA for an Educational Session on the FDA &...
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September 30, 2024

US News live- A Call to Action to Reverse Racial Stigmas in Sickle Cell Disease Care

This webinar is part of Healthcare of Tomorrow, a virtual event series from U.S. News...
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September 28, 2024

2024 Sickle Cell Awareness Blood Drive & Health Expo

Together with the American Red Cross, the Sickle Cell Coalition of Maryland, and Top Ladies...
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September 28, 2024

50th Annual 5K/1K Walk, Jog, Bike for a Cure

What? Grab your family and friends and Lets get active and Raise Sickle Cell Awareness...
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September 28, 2024

7TH ANNUAL LAS VEGAS SICKLE CELL WALK

Join us for the 7th Annual Las Vegas Sickle Cell Walk, a community-driven event dedicated...
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September 28, 2024

Annual Sickle Cell Disease Awareness

Annual Sickle Cell Disease Awareness Event Come join NEW JERSEY HAITI PARTNERS at the Sphinx...
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September 28, 2024

Ellafest℠ 2024

Ellafest℠ 2024 is finally here! Join us for a day filled with music, food, and fun...
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September 28, 2024

Fifth Annual Sickle Cell Awareness 5K Walk

In honor of Sickle Cell Awareness month in September, The Melodies Center and Albany Medical...
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September 28, 2024 St. Louis, MO

Radiant Red: A Fashion Show for Sickle Cell Awareness

Get ready for a fabulous fashion show that will shine bright like a radiant red...
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September 28, 2024

Sickle Cell Awareness Brunch

Welcome to the Sickle Cell Conquerors of CF - Sickle Cell Awareness Brunch! Join us on Sat...
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September 28, 2024

“ALL OF US” Sickle Cell Fundraising Event

"ALL OF US" Sickle Cell Fundraising Event will be an all day experience! Our outside FESTIVAL is...
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September 27, 2024

Hispanic Sickle Cell Seminar

Come out and learn about sickle cell disease and programs that support individuals and families...
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September 27, 2024

Next Steps After Pfizer’s Withdrawal of Voxelotor

The National Alliance of Sickle Cell Centers (NASCC) in partnership with the Sickle Cell Disease...
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September 24, 2024 Washington DC

HHS Inaugural Sickle Cell Disease Summit

On behalf of HHS Secretary Xavier Becerra and Assistant Secretary for Health Admiral Rachel Levine,...
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September 21, 2024 Washington DC

Sickle Cell Awareness Community Day Program

Join us this September for a special Community Day program in honor of National Sickle...
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September 21, 2024

Sickle Cell Disease Dinner and Musical Extravaganza

Join the Sickle Cell Disease Association of America- St. Ptersburg Chapter for their Sickle Cell...
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September 21, 2024

Walk/5K Run for Sickle Cell

Join the Massachusetts Sickle Cell Association for their walk/run event! The in-person walk/run will take place in...
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September 20, 2024

Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases

The FDA Center for Biologics Evaluation and Research (CBER) is hosting a public patient listening...
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September 19, 2024

17th Annual Sickle Cell in Focus Conference

A world-class educational update on sickle cell disease, the Sickle Cell in Focus (SCiF) conference...
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September 19, 2024

UAMS 2024 Annual Sickle Cell Symposium

Join the University of Arkansas for Medical Sciences for their 2024 Annual Sickle Cell Symposium- Living...
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September 18, 2024

16th Annual SCD Educational Summit

The Cayenne Wellness Center’s Annual Sickle Cell Disease Educational Summit spans four days and aims...
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September 18, 2024

SCDAA Nod to “Naz” Traveling Exhibit

Sickle Cell Disease Association of America, Inc. invites all to attend the Nod to "Naz"...
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September 17, 2024

Improved Treatments for Children with SCD Webinar

On Tuesday September 17, 2024, 12:00 – 1:30 pm ET, OMH will host a webinar with...
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September 17, 2024

Terumo Blood and Cell Technologies: Patient Listening Virtual Roundtable

Join Terumo Blood and Cell Technologies for a patient-focused, virtual roundtable where we will learn...
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September 16, 2024

3rd Annual Sickle on the Green Golf Tournament

Join Sickle Cell Partners of the Carolinas for the 3rd Annual Sickle on the Green...
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September 14, 2024

13th Annual Stroll Sickle Cell-ebration

Join the Sickle Cell Association- St. Louis for their Annual Sickle Cell Stroll! The Sickle...
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September 14, 2024 Washington DC

2024 Cure Sickle Cell Now 5K Walk/Run

Join Howard University Center for Sickle Cell Disease  in front of Howard University Hospital at...
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September 14, 2024 Atlanta, GA

Sickle Cell 5k Road Race/Walk | Concert| Candlelight Vigil

Registration is now open for the 44th Annual Sickle Cell Foundation of Georgia, Inc. 5K...
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September 14, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Save the Date! Come and join Sickle Cell Anemia Awareness of San Francisco for their...
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September 12, 2024

More Than Our Sickle Cell: A Global Community Conversation (SEPT)

Join us for LIVE conversations with Biba Tinga, Warrior Mom & President of Sickle Cell Disease...
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September 7, 2024

10th Anniversary Decade of Hope Gala

Join Sickle Cell Uhuru Trust Kenya and the Global Action Network for Sickle Cell and...
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September 7, 2024

Sickle Cell Warrior Walk & Run 5k

Breaking The Sickle Cell Cycle Foundation, Inc. cordially invites you to the 4th Annual Sickle...
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September 7, 2024

Sickle Cell-ebration of Hope Champions Dinner & Gala

Join the Sickle Cell Foundation of Minnesota for a fun-filled evening of inspiration, aspiration, and...
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September 7, 2024

Transformative Curative Gene therapy transplant for Sickle Cell Anemia Educational Symposium

Save the date for this educational symposium! Join TOVA Community Health and hear from guest...
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September 6, 2024

Commercial Challenges for Gene Editing (including manufacturing and patient access)

Join Caring Cross for their Technology Education webinar. This course will explore the commercial landscape...
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September 6, 2024 Washington DC

Critical Conversations: Access to Fertility Services

Sickle Cell Reproductive Health Education Directive's (SCRED) Critical Conversations Panel And Dinner Aims To Address...
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September 4, 2024

CMS & ASH Town Hall Meeting

The Centers for Medicare & Medicaid Services (CMS), in partnership with the support of the...
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September 4, 2024 Washington DC

Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence

The Reagan-Udall Foundation for the FDA, in collaboration with the Bill & Melinda Gates Foundation,...
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August 29, 2024

P.O.W.E.R ECHO CHW Training

Join Sickle Cell Disease Association of America (SCDAA) for their next free P.O.W.E.R ECHO CHW...
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August 28, 2024

Sickle Cell Empowerment Circle

Join the monthly empowerment circle for community members impacted by sickle cell disease Support &...
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August 24, 2024

HHS Sickle Cell Disease Summit

Summit Theme: Empowered and Thriving SCD Warriors and Communities When: Tuesday, September 24, 2024 Time:  9:00 AM –...
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August 24, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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August 23, 2024

SCAGO Sickle Cell Disease Summit

The 4th Annual Sickle Cell Awareness Group of Ontario (SCAGO) Sickle Cell Summit themed  "Innovative...
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August 19, 2024

SCD SOAR: Mental Health

Sickle Cell Disease SOAR is a new virtual series designed to enhance quality of life...
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August 17, 2024

2024 Sickle Cell Patient Education: Transition Care Management

Fred Hutch Cancer Center, Seattle Children’s, and Metropolitan Seattle Sickle Cell Taskforce invite you to...
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August 17, 2024

Is the Cure Right for Me? Webinar

This event aims to educate our community on the accessibility of a cure for sickle...
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August 13, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates, Health Workers, and Organizations in Driving Change and Support

Join the Global Sickle Cell Alliance for an empowering webinar on "Sickle Cell and Thalassemia:...
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August 12, 2024

NHBLI’s Annual SCD Research Meeting

The National Heart, Lung, and Blood Institute (NHLBI), a part of the National Institutes of...
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August 10, 2024

SCAASF Advocacy & Empowerment Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session!
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August 7, 2024

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....
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August 7, 2024

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....
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July 31, 2024

SCAF Book Launch

The Sickle Cell Aid Foundation (SCAF) is delighted to extend a special invitation for the...
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July 30, 2024

Sleep Disturbances in Sickle Cell Disease Webinar

Join the Sickle Cell Data Collection project for one of their quarterly webinars featuring experts...
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July 28, 2024

NASCC Annual Meeting and Consensus

The National Alliance of Sickle Cell Centers is hosting it's annual consensus conference in Minneapolis,...
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July 27, 2024

Diversity & Inclusion & SCD

Join Cayenne Wellness Center for their miniSeminar: Diversity and Inclusion & SCD - Care for...
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July 27, 2024

SCAGO Transition from Paediatric to Adult Life (School and Healthcare)

Join the Sickle Cell Awareness Group of Ontario (SCAGO) for their Learning for Life Series:...
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July 27, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates and Organizations in Driving and Support.

Join the Global Sickle Cell Alliance as they culminate their social media campaign to raise...
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July 26, 2024 Atlanta, GA

Back to School Block Party

Join the Sickle Cell Foundation of Georgia, My Three Sicklers & the Sickle Cell Consortium...
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July 22, 2024

The Thriving Warrior: Supporting the Mental Health Needs of Individuals Living with Sickle Cell Disease

In observance of National Minority Mental Health Awareness Month, the HHS Office of the Assistant...
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July 20, 2024

SCDAA Warrior Walkathon

Walk with the Stars is now the SCDAA Warrior Walkathon! Rally your friends, family and...
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July 17, 2024

11th Annual Sickle Cell Warriors & Caregivers Convention

Join the 11th Annual Sickle Cell Warriors & Caregivers Convention, July 17-21, at the Westin...
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July 13, 2024

SCAASF Advocacy & Empowerment Program Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session on...
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July 13, 2024

SCDAA Masterclass En Español

Únase a la Asociación de Enfermedades de Células Falciformes de América (Sickle Cell Disease Association...
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July 13, 2024 Atlanta, GA

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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June 29, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Thank you for taking part in this remarkable opportunity to raise awareness for the sickle...
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June 29, 2024

Sickle Cell Disease Association of Illinois (SCDAI) Bowling Fundraiser

In honor of World Sickle Cell Day, please join SCDAI for a FUN-filled evening of...
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June 27, 2024

European Sickle Cell Federation 2024 Summit

Join the European Sickle Cell Federation (ESCF) at the Crowne Plaza Hotel, Blanchardstown, Dublin for...
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June 27, 2024

White House Black Initiative Lunch & Learn: Supporting the Civil Rights of Students with Disabilities

The White House Initiative on Educational Equity, Excellence, and Economic Opportunity for Black Americans cordially...
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June 24, 2024

National Health Authority of India Workshop on Sickle Cell

Join the National Health Authority of India as it holds this virtual capacity building workshop...
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June 24, 2024

Rising Above my “Red Curve” Challenges

Join the Ikorodu Public Schools Sickle Cell Club as they present this in-person event! LOCATION:...
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June 22, 2024

Martin Center Sickle Cell Initiative 28th Annual Sickle Cell 5K Walk/Run

There are hundreds of families in Central Indiana living with the burden of Sickle Cell...
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June 22, 2024

Projecto Luaforme evento do dia mundial da anemia falciforme

A ONG EFATHA (Associação de Ajuda as Crianças com Hemoglobinopatia) e o Projecto Luaforme convidam...
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June 22, 2024

Sickle Cell Association of Houston Party with a Purpose

Come rain or shine, join the Sickle Cell Association of Houston celebrating World Sickle Cell...
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June 21, 2024

Project SPIRIT Sickle Cell, Inc., Blood Drive

Marylanders who identify as Black or African American are welcome to participate in this livesaving...
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June 20, 2024

Sickle Cell Foundation Nigeria Virtual Townhall Meeting

Join the Sickle Cell Foundation of Nigeria as part of global World Sickle Cell Day...
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June 19, 2024

5th Annual World Sickle Cell Day 24 Hour Celebration

Spanning midnight to midnight on Saturday, June 19th, the Sickle Cell Community Consortium is proud...
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June 19, 2024

SCAGO World Sickle Cell Awareness Day Celebration

Join on June 19, 2024, for a World Sickle Cell Awareness Day Celebration from 11:00...
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June 19, 2024

SCANJ Juneteenth Block Party with A Sickle Cellabration

The Sickle Cell Association of New Jersey invites you to join their Sickle CELLabration for...
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June 19, 2024

SCD Awareness Illumination- Niagra Falls

Landmarks and buildings all across the globe will be illuminated red and while to symbolize...
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June 19, 2024

SCD Meet & Greet- McMaster Children’s Hospital

Join the Sickle Cell Awareness Group of Ontario on June 19, 2024, for a Meet...
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June 19, 2024

SCDAA SickleTini Summer Soiree

SickleTini is back! Join Sickle Cell Disease Association of America, Inc to recognize World Sickle...
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June 19, 2024

SICKLE CELL WARRIORS OF WISCONSIN BLOOD DRIVE

Join Sickle Cell Warriors of Wisconsin as they host a mobile blood drive in Milwaukee,...
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June 19, 2024

World Health Organization’s World Sickle Cell Awareness Day webinar

This webinar will provide background, raise awareness, and discuss best practices in treating and managing...
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June 19, 2024

World Sickle Cell Day

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June 18, 2024

Howard University- 11th Annual World Sickle Cell Day Webinar

Join this free webinar is presented by the Howard University Center for Sickle Cell Disease....
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June 18, 2024

Sickle Cell Education & Awareness Symposium

Please join the Sickle cell Foundation at the Palm Beach Post on Tuesday, June 18th...
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June 18, 2024

Sickle Cell Sanctuary Grand Opening

The Grand Opening Ceremony for the Sickle Cell Sanctuary will be held at the Sickle...
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June 18, 2024

Strike Out Sickle Cell

It’s A Sickle Cell-ebration! Come out and celebrate with the Sickle Cell Anemia Resource Foundation-...
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June 18, 2024

World Sickle Cell Day Data Panel

In observance of World Sickle Cell Day, the HHS Office of the Assistant Secretary for...
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June 18, 2024

“Stigma” and “Uncertainty in Illness”- Webinar

Global Sickle Cell Alliance, Inc (GLOSCA) is offering a webinar on “STIGMA” AND “UNCERTAINTY IN...
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June 15, 2024

2024 World Sickle Cell Day Event

Join the Sickle Cell Foundation of Florida for their 2024 World Sickle Cell Day Event....
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June 15, 2024

26th Annual Sickle Cell Walk

The 26th Annual Sickle Cell Walk will be held Saturday, June 15, 2023 in Birmingham,...
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June 15, 2024

Houston Sickle Cell Curative & Modifying Therapies Summit & Health Fair

Houston is home to the largest medical center in the nation. Despite this, individuals living...
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June 15, 2024

Redteenth Cultural Festival

Join the Sickle Cell Foundation of Palm Beach County & Treasure Coast and the Village...
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June 14, 2024

World Blood Donor Day

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June 11, 2024

Terumo Blood and Cell Technologies Clinical Expert Meeting

Join Terumo for this Clinical Expert Meeting to hear discussion about providing quality patient care...
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June 10, 2024

Blood Advocacy Week

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June 8, 2024

Advocacy and Empowerment Program Session 6

Join SCAASF in a session receiving  social and medical advice.
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June 7, 2024 Broward County Convention Center

Foundation for Sickle Cell Disease Research (FSCDR) 18th Annual Sickle Cell Disease Research and Educational Symposium

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June 1, 2024

LGBTQ+ Pride Month Starts!

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June 1, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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