NPAF Policy Consortium

June 11, 2025 3:00 PM ( America/New_York (UTC -04:00) ) Virtual

The National Patient Advocate Foundation (NPAF) is hosting a Policy Consortium Financial Hardship Hurts Health on Wednesday, June 11, 3-4 ET via Zoom.

In this meeting, we will explore powerful new findings from Patient Insight Institute’s latest study confirming what many patients already know: financial wellness must be a part of healthcare.

 

Rebekah Angove and Rebecca Kirch will lead the discussion with opening remarks from Sa'Brina Davis and Stephen Christoph, members of the NPAF grassroots network and Patient Insight Institute's Experts by Experience.

 

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October 1, 2025

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September 30, 2025

SCDPain Webinar

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September 30, 2025

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September 29, 2025

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September 28, 2025

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September 27, 2025

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September 26, 2025 Ontario, Canada

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September 26, 2025

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September 25, 2025

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September 6, 2025

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July 21, 2025

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July 19, 2025 Baltimore, MD

12th Annual SCDAA Warrior Walkathon

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July 19, 2025

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1st TIF Pan American Conference on Thalassaemia & Other Haemoglobin Disorders

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June 28, 2025 Orlando, FL

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Take Your Loved One for a Check-Up

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June 20, 2025 Washington DC

It’s About Time: Defining Clinical Endpoints for Bleeding in Studies of Women and Girls

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June 19, 2025

2025 World Sickle Cell Day 24-hr Marathon Event

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June 14, 2025

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Access to New Therapies: Hope or Hype?

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May 14, 2025

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March 20, 2025

9th Annual Leadership Summit

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March 16, 2025

Sickle Cell Care Coordination for Achieving Patient Empowerment (SCCAPE)

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December 20, 2024

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December 20, 2024

Hospitalization and Sickle Cell Disease Webinar

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December 18, 2024

AABB Vaccination and Blood Donation Policies Protect Blood Safety (24EL-498)

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December 18, 2024

Mental Health & Suicide Prevention

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December 17, 2024

Rare Disease Day 2025 Kick Off

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December 17, 2024

Sickle Cell & Trait Community Gathering

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December 14, 2024 Nashville, TN

BTSSCC Merry Christmas Bash

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December 14, 2024

SCUT Hope for the Holidays – A Sickle Cell Christmas

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December 7, 2024 San Diego Convention Center

66TH ASH ANNUAL MEETING AND EXPOSITION

Mark Your Calendars! The American Society of Hematology is returning to San Diego for the...
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November 23, 2024 Atlanta, GA

SCFG Black Tie Gala 2024

Please join us for a Black-Tie Charity Gala Affair benefiting Georgia's sickle cell community! This...
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November 19, 2024

SCD S.O.A.R.: Affordable Housing

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November 15, 2024

Sickle Cell Caregivers Summit

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November 9, 2024

CELLebration! A Gospel Musical Journey

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November 8, 2024

Global Congress of the Global Action Network for Sickle Cell and Other Inherited Disorders

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November 7, 2024

Haematocon 2024

The Indian Society of Hematology & Blood Transfusion, Hematology Oncology Society of Nagpur, and Hemex...
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November 6, 2024

South Carolina State Summit for Healthcare Providers on Sickle Cell Care

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November 2, 2024

Sickle Cell & Chronic Pain Management Symposium 2024

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November 1, 2024

Sickle Cell & Chronic Pain Management Symposium 2024

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November 1, 2024 Orlando, FL

Sickle Cell & Chronic Pain Management Symposium 2024

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October 28, 2024

Sickle Cell Data Collection Program Summit

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October 26, 2024

Marketplace Insurance Kick Off Event

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October 26, 2024

SCAGO Sickle Cell Disease and Complications Including Stroke

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October 23, 2024

SCDAA 52nd Annual National Convention

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October 23, 2024

SCDAA 52nd Annual National Convention

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October 23, 2024

Sickle Cell Consortium Office Hours

Office Hours will be held on Wednesday, October 23, 2024, from 3 to 6 pm...
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October 19, 2024

2024 Acadiana Sickle Cell Walk/Run and Health & Wellness Expo

Join the highly-anticipated annual Health & Wellness Expo, presented by the 100 Black Men of...
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October 19, 2024

Toronto Waterfront Marathon

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October 18, 2024

Nothing About Us Without Us: Challenges and Opportunities for Engaging Communities in the Development of Gene Therapies in Resource-Limited Settings

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October 18, 2024 St. Petersburg, FL

Sickle Cell Fall Symposium

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October 17, 2024

Critical Conversations: Contraception in Sickle Cell Disease

Join The Sickle Cell Reproductive Health Education Directive (SCRED) for their next Critical Conversation Webinar...
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October 16, 2024

Advancing Rare Disease Therapies Through an FDA Rare Disease Innovation Hub

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October 15, 2024

Policy Consortium: Listening Session

Join the National Patient Advocate Foundation (NPAF) for this listening session. Policy Consortium brings together...
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October 13, 2024

Give4Life and Raise Awareness: Sickle Cell Bill-S.2710/A.4052

We are back this year for another wonderful event to update you on the newly...
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October 12, 2024

AYA Warrior Community Day

DATE: Sat Oct. 12 TIME: 2pm - 5pm COST: $5 per person, includes food + unlimited arcade gaming...
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October 12, 2024 Orlando, FL

The Power Within: Education & Empowerment Luncheon

Join Kids Conquering Sickle Cell Disease Foundation Inc to be EMPOWERED, EDUCATED, & ENCOURAGED! Join...
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October 12, 2024

WALK TO BREAK THE SICKLE CYCLE

Grab your family and friends and Lets get active and Raise Sickle Cell Awareness One-Mile...
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October 5, 2024

Empowered Caregivers Forum 2024- Session III

Join Carla Lewis, CEO of Kids Conquering Sickle Cell Disease Foundation and Rae Blaylark, CEO...
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October 5, 2024 Boston, MA

State of Sickle Cell Care in MA

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October 2, 2024

Community Town Hall & Education: Oxybryta

Join the Sickle Cell Consortium & SCDAA for an Educational Session on the FDA &...
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September 30, 2024

US News live- A Call to Action to Reverse Racial Stigmas in Sickle Cell Disease Care

This webinar is part of Healthcare of Tomorrow, a virtual event series from U.S. News...
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September 28, 2024

2024 Sickle Cell Awareness Blood Drive & Health Expo

Together with the American Red Cross, the Sickle Cell Coalition of Maryland, and Top Ladies...
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September 28, 2024

50th Annual 5K/1K Walk, Jog, Bike for a Cure

What? Grab your family and friends and Lets get active and Raise Sickle Cell Awareness...
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September 28, 2024

7TH ANNUAL LAS VEGAS SICKLE CELL WALK

Join us for the 7th Annual Las Vegas Sickle Cell Walk, a community-driven event dedicated...
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September 28, 2024

Annual Sickle Cell Disease Awareness

Annual Sickle Cell Disease Awareness Event Come join NEW JERSEY HAITI PARTNERS at the Sphinx...
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September 28, 2024

Ellafest℠ 2024

Ellafest℠ 2024 is finally here! Join us for a day filled with music, food, and fun...
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September 28, 2024

Fifth Annual Sickle Cell Awareness 5K Walk

In honor of Sickle Cell Awareness month in September, The Melodies Center and Albany Medical...
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September 28, 2024 St. Louis, MO

Radiant Red: A Fashion Show for Sickle Cell Awareness

Get ready for a fabulous fashion show that will shine bright like a radiant red...
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September 28, 2024

Sickle Cell Awareness Brunch

Welcome to the Sickle Cell Conquerors of CF - Sickle Cell Awareness Brunch! Join us on Sat...
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September 28, 2024

“ALL OF US” Sickle Cell Fundraising Event

"ALL OF US" Sickle Cell Fundraising Event will be an all day experience! Our outside FESTIVAL is...
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September 27, 2024

Hispanic Sickle Cell Seminar

Come out and learn about sickle cell disease and programs that support individuals and families...
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September 27, 2024

Next Steps After Pfizer’s Withdrawal of Voxelotor

The National Alliance of Sickle Cell Centers (NASCC) in partnership with the Sickle Cell Disease...
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September 24, 2024 Washington DC

HHS Inaugural Sickle Cell Disease Summit

On behalf of HHS Secretary Xavier Becerra and Assistant Secretary for Health Admiral Rachel Levine,...
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September 21, 2024 Washington DC

Sickle Cell Awareness Community Day Program

Join us this September for a special Community Day program in honor of National Sickle...
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September 21, 2024

Sickle Cell Disease Dinner and Musical Extravaganza

Join the Sickle Cell Disease Association of America- St. Ptersburg Chapter for their Sickle Cell...
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September 21, 2024

Walk/5K Run for Sickle Cell

Join the Massachusetts Sickle Cell Association for their walk/run event! The in-person walk/run will take place in...
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September 20, 2024

Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases

The FDA Center for Biologics Evaluation and Research (CBER) is hosting a public patient listening...
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September 19, 2024

17th Annual Sickle Cell in Focus Conference

A world-class educational update on sickle cell disease, the Sickle Cell in Focus (SCiF) conference...
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September 19, 2024

UAMS 2024 Annual Sickle Cell Symposium

Join the University of Arkansas for Medical Sciences for their 2024 Annual Sickle Cell Symposium- Living...
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September 18, 2024

16th Annual SCD Educational Summit

The Cayenne Wellness Center’s Annual Sickle Cell Disease Educational Summit spans four days and aims...
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September 18, 2024

SCDAA Nod to “Naz” Traveling Exhibit

Sickle Cell Disease Association of America, Inc. invites all to attend the Nod to "Naz"...
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September 17, 2024

Improved Treatments for Children with SCD Webinar

On Tuesday September 17, 2024, 12:00 – 1:30 pm ET, OMH will host a webinar with...
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September 17, 2024

Terumo Blood and Cell Technologies: Patient Listening Virtual Roundtable

Join Terumo Blood and Cell Technologies for a patient-focused, virtual roundtable where we will learn...
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September 16, 2024

3rd Annual Sickle on the Green Golf Tournament

Join Sickle Cell Partners of the Carolinas for the 3rd Annual Sickle on the Green...
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September 14, 2024

13th Annual Stroll Sickle Cell-ebration

Join the Sickle Cell Association- St. Louis for their Annual Sickle Cell Stroll! The Sickle...
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September 14, 2024 Washington DC

2024 Cure Sickle Cell Now 5K Walk/Run

Join Howard University Center for Sickle Cell Disease  in front of Howard University Hospital at...
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September 14, 2024 Atlanta, GA

Sickle Cell 5k Road Race/Walk | Concert| Candlelight Vigil

Registration is now open for the 44th Annual Sickle Cell Foundation of Georgia, Inc. 5K...
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September 14, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Save the Date! Come and join Sickle Cell Anemia Awareness of San Francisco for their...
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September 12, 2024

More Than Our Sickle Cell: A Global Community Conversation (SEPT)

Join us for LIVE conversations with Biba Tinga, Warrior Mom & President of Sickle Cell Disease...
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September 7, 2024

10th Anniversary Decade of Hope Gala

Join Sickle Cell Uhuru Trust Kenya and the Global Action Network for Sickle Cell and...
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September 7, 2024

Sickle Cell Warrior Walk & Run 5k

Breaking The Sickle Cell Cycle Foundation, Inc. cordially invites you to the 4th Annual Sickle...
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September 7, 2024

Sickle Cell-ebration of Hope Champions Dinner & Gala

Join the Sickle Cell Foundation of Minnesota for a fun-filled evening of inspiration, aspiration, and...
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September 7, 2024

Transformative Curative Gene therapy transplant for Sickle Cell Anemia Educational Symposium

Save the date for this educational symposium! Join TOVA Community Health and hear from guest...
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September 6, 2024

Commercial Challenges for Gene Editing (including manufacturing and patient access)

Join Caring Cross for their Technology Education webinar. This course will explore the commercial landscape...
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September 6, 2024 Washington DC

Critical Conversations: Access to Fertility Services

Sickle Cell Reproductive Health Education Directive's (SCRED) Critical Conversations Panel And Dinner Aims To Address...
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September 4, 2024

CMS & ASH Town Hall Meeting

The Centers for Medicare & Medicaid Services (CMS), in partnership with the support of the...
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September 4, 2024 Washington DC

Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence

The Reagan-Udall Foundation for the FDA, in collaboration with the Bill & Melinda Gates Foundation,...
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August 29, 2024

P.O.W.E.R ECHO CHW Training

Join Sickle Cell Disease Association of America (SCDAA) for their next free P.O.W.E.R ECHO CHW...
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August 28, 2024

Sickle Cell Empowerment Circle

Join the monthly empowerment circle for community members impacted by sickle cell disease Support &...
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August 24, 2024

HHS Sickle Cell Disease Summit

Summit Theme: Empowered and Thriving SCD Warriors and Communities When: Tuesday, September 24, 2024 Time:  9:00 AM –...
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August 24, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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August 23, 2024

SCAGO Sickle Cell Disease Summit

The 4th Annual Sickle Cell Awareness Group of Ontario (SCAGO) Sickle Cell Summit themed  "Innovative...
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August 19, 2024

SCD SOAR: Mental Health

Sickle Cell Disease SOAR is a new virtual series designed to enhance quality of life...
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August 17, 2024

2024 Sickle Cell Patient Education: Transition Care Management

Fred Hutch Cancer Center, Seattle Children’s, and Metropolitan Seattle Sickle Cell Taskforce invite you to...
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August 17, 2024

Is the Cure Right for Me? Webinar

This event aims to educate our community on the accessibility of a cure for sickle...
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August 13, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates, Health Workers, and Organizations in Driving Change and Support

Join the Global Sickle Cell Alliance for an empowering webinar on "Sickle Cell and Thalassemia:...
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August 12, 2024

NHBLI’s Annual SCD Research Meeting

The National Heart, Lung, and Blood Institute (NHLBI), a part of the National Institutes of...
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August 10, 2024

SCAASF Advocacy & Empowerment Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session!
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August 7, 2024

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....
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August 7, 2024

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....
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July 31, 2024

SCAF Book Launch

The Sickle Cell Aid Foundation (SCAF) is delighted to extend a special invitation for the...
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July 30, 2024

Sleep Disturbances in Sickle Cell Disease Webinar

Join the Sickle Cell Data Collection project for one of their quarterly webinars featuring experts...
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July 28, 2024

NASCC Annual Meeting and Consensus

The National Alliance of Sickle Cell Centers is hosting it's annual consensus conference in Minneapolis,...
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July 27, 2024

Diversity & Inclusion & SCD

Join Cayenne Wellness Center for their miniSeminar: Diversity and Inclusion & SCD - Care for...
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July 27, 2024

SCAGO Transition from Paediatric to Adult Life (School and Healthcare)

Join the Sickle Cell Awareness Group of Ontario (SCAGO) for their Learning for Life Series:...
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July 27, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates and Organizations in Driving and Support.

Join the Global Sickle Cell Alliance as they culminate their social media campaign to raise...
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July 26, 2024 Atlanta, GA

Back to School Block Party

Join the Sickle Cell Foundation of Georgia, My Three Sicklers & the Sickle Cell Consortium...
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July 22, 2024

The Thriving Warrior: Supporting the Mental Health Needs of Individuals Living with Sickle Cell Disease

In observance of National Minority Mental Health Awareness Month, the HHS Office of the Assistant...
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July 20, 2024

SCDAA Warrior Walkathon

Walk with the Stars is now the SCDAA Warrior Walkathon! Rally your friends, family and...
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July 17, 2024

11th Annual Sickle Cell Warriors & Caregivers Convention

Join the 11th Annual Sickle Cell Warriors & Caregivers Convention, July 17-21, at the Westin...
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July 13, 2024

SCAASF Advocacy & Empowerment Program Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session on...
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July 13, 2024

SCDAA Masterclass En Español

Únase a la Asociación de Enfermedades de Células Falciformes de América (Sickle Cell Disease Association...
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July 13, 2024 Atlanta, GA

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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June 29, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Thank you for taking part in this remarkable opportunity to raise awareness for the sickle...
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June 29, 2024

Sickle Cell Disease Association of Illinois (SCDAI) Bowling Fundraiser

In honor of World Sickle Cell Day, please join SCDAI for a FUN-filled evening of...
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June 27, 2024

European Sickle Cell Federation 2024 Summit

Join the European Sickle Cell Federation (ESCF) at the Crowne Plaza Hotel, Blanchardstown, Dublin for...
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June 27, 2024

White House Black Initiative Lunch & Learn: Supporting the Civil Rights of Students with Disabilities

The White House Initiative on Educational Equity, Excellence, and Economic Opportunity for Black Americans cordially...
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June 24, 2024

National Health Authority of India Workshop on Sickle Cell

Join the National Health Authority of India as it holds this virtual capacity building workshop...
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June 24, 2024

Rising Above my “Red Curve” Challenges

Join the Ikorodu Public Schools Sickle Cell Club as they present this in-person event! LOCATION:...
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June 22, 2024

Martin Center Sickle Cell Initiative 28th Annual Sickle Cell 5K Walk/Run

There are hundreds of families in Central Indiana living with the burden of Sickle Cell...
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June 22, 2024

Projecto Luaforme evento do dia mundial da anemia falciforme

A ONG EFATHA (Associação de Ajuda as Crianças com Hemoglobinopatia) e o Projecto Luaforme convidam...
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June 22, 2024

Sickle Cell Association of Houston Party with a Purpose

Come rain or shine, join the Sickle Cell Association of Houston celebrating World Sickle Cell...
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June 21, 2024

Project SPIRIT Sickle Cell, Inc., Blood Drive

Marylanders who identify as Black or African American are welcome to participate in this livesaving...
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June 20, 2024

Sickle Cell Foundation Nigeria Virtual Townhall Meeting

Join the Sickle Cell Foundation of Nigeria as part of global World Sickle Cell Day...
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June 19, 2024

5th Annual World Sickle Cell Day 24 Hour Celebration

Spanning midnight to midnight on Saturday, June 19th, the Sickle Cell Community Consortium is proud...
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June 19, 2024

SCAGO World Sickle Cell Awareness Day Celebration

Join on June 19, 2024, for a World Sickle Cell Awareness Day Celebration from 11:00...
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June 19, 2024

SCANJ Juneteenth Block Party with A Sickle Cellabration

The Sickle Cell Association of New Jersey invites you to join their Sickle CELLabration for...
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June 19, 2024

SCD Awareness Illumination- Niagra Falls

Landmarks and buildings all across the globe will be illuminated red and while to symbolize...
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June 19, 2024

SCD Meet & Greet- McMaster Children’s Hospital

Join the Sickle Cell Awareness Group of Ontario on June 19, 2024, for a Meet...
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June 19, 2024

SCDAA SickleTini Summer Soiree

SickleTini is back! Join Sickle Cell Disease Association of America, Inc to recognize World Sickle...
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June 19, 2024

SICKLE CELL WARRIORS OF WISCONSIN BLOOD DRIVE

Join Sickle Cell Warriors of Wisconsin as they host a mobile blood drive in Milwaukee,...
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June 19, 2024

World Health Organization’s World Sickle Cell Awareness Day webinar

This webinar will provide background, raise awareness, and discuss best practices in treating and managing...
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June 19, 2024

World Sickle Cell Day

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June 18, 2024

Howard University- 11th Annual World Sickle Cell Day Webinar

Join this free webinar is presented by the Howard University Center for Sickle Cell Disease....
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June 18, 2024

Sickle Cell Education & Awareness Symposium

Please join the Sickle cell Foundation at the Palm Beach Post on Tuesday, June 18th...
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June 18, 2024

Sickle Cell Sanctuary Grand Opening

The Grand Opening Ceremony for the Sickle Cell Sanctuary will be held at the Sickle...
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June 18, 2024

Strike Out Sickle Cell

It’s A Sickle Cell-ebration! Come out and celebrate with the Sickle Cell Anemia Resource Foundation-...
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June 18, 2024

World Sickle Cell Day Data Panel

In observance of World Sickle Cell Day, the HHS Office of the Assistant Secretary for...
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June 18, 2024

“Stigma” and “Uncertainty in Illness”- Webinar

Global Sickle Cell Alliance, Inc (GLOSCA) is offering a webinar on “STIGMA” AND “UNCERTAINTY IN...
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June 15, 2024

2024 World Sickle Cell Day Event

Join the Sickle Cell Foundation of Florida for their 2024 World Sickle Cell Day Event....
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June 15, 2024

26th Annual Sickle Cell Walk

The 26th Annual Sickle Cell Walk will be held Saturday, June 15, 2023 in Birmingham,...
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June 15, 2024

Houston Sickle Cell Curative & Modifying Therapies Summit & Health Fair

Houston is home to the largest medical center in the nation. Despite this, individuals living...
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June 15, 2024

Redteenth Cultural Festival

Join the Sickle Cell Foundation of Palm Beach County & Treasure Coast and the Village...
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June 14, 2024

World Blood Donor Day

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June 11, 2024

Terumo Blood and Cell Technologies Clinical Expert Meeting

Join Terumo for this Clinical Expert Meeting to hear discussion about providing quality patient care...
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June 10, 2024

Blood Advocacy Week

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June 8, 2024

Advocacy and Empowerment Program Session 6

Join SCAASF in a session receiving  social and medical advice.
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June 7, 2024 Broward County Convention Center

Foundation for Sickle Cell Disease Research (FSCDR) 18th Annual Sickle Cell Disease Research and Educational Symposium

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June 1, 2024

LGBTQ+ Pride Month Starts!

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June 1, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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