June 18, 20243:00 PMVirtualIn observance of World Sickle Cell Day, the HHS Office of the Assistant Secretary for Health, the Office of the National Coordinator for Health Information Technology, and the Office of Intergovernmental and External Affairs are excited to host "What’s Data Got to Do With It? Perspectives on Federal Sickle Cell Disease Data Systems."
Federal agencies and external partners collect sickle cell disease (SCD)-related data for multiple purposes and needs. Gaining broad stakeholder input and buy-in on processes to promote timely and interoperable sharing of these data is critical to improve health outcomes for people living with SCD. In this panel, you will learn about varied SCD data systems and a new effort to develop an SCD minimum core data set that can be applied across federal and non-federal enterprises.
Language: English
